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Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome
Download PDF Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome
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Product details
Paperback: 260 pages
Publisher: Left Paw Press, LLC; 1 edition (July 12, 2010)
Language: English
ISBN-10: 098257715X
ISBN-13: 978-0982577158
Product Dimensions:
6 x 0.6 x 9 inches
Shipping Weight: 11.2 ounces (View shipping rates and policies)
Average Customer Review:
4.3 out of 5 stars
118 customer reviews
Amazon Best Sellers Rank:
#33,047 in Books (See Top 100 in Books)
This is a technical book, that has a great deal of information--but is put together in a way that is confusing to read and filled with so many references, that often the information gets lost in the acknowledgements. Hasn't Dr. Tinkle hear of footnotes? It may be the history writer in me, but I wanted to reorganize the chapters so that they could be read and understood easily. Using an index to locate a topic quickly when you go back to the book, would also be helpful. I believe a good editor would have made this book more readable, and much easier to understand. I would also like to see a more readable and larger font, with the printing further from the binding side of the book.Those are all technical, correctable glitches. The book is full of useful and pertinent information--from making sense of the various type of EDS-HM, to how to talk to doctors, many of whom must have slept through that 15 minutes of lecture at medical school, about the disease. Those of us who have this in our lives are often in mental pain, without doctors, loved ones, and employers, not "getting it." Dr. Tinkle has put, in normal language, the uniqueness of people who can bend fingers to forearms, touch tongues to noses, and link an arm to an arm behind their back, without losing sight of the fact that such amazing little parlor tricks have painful and long-lasting consequences.If you have this disease, this book is well worth plodding through, and gleaning the MANY available facts.
This book came highly recommended by my physical therapist after my recent diagnoses and I'm sure the information is contained within the book is would be good. However, there is absolutely zero margin toward the spine of the book so every word at the start of each line is unreadable and the word or two after it is hidden without manipulation of the book. For some, that may not be a bother but for me, it's highly bothersome that I can't just sit down and read the book without having to nearly tear the book apart to read or just guess what is written.
Great content of course - but their printer/designer should be ashamed. The words go so far in the center (the spine) that it is VERY difficult to read and hold open to see the words. And if you understand the topic....that is just mean. Hurts my hands! -Jamie
While some of the info in this book is now outdated, the basic concepts within are still almost all valuable to a person with hypermobile EDS. This book really does provide a number of pratical and logical steps to living life with EDS, for both the patient and the medical providers that work with them.I am very happy to have this basic but important factual info and will likely share sections of this book with my healthcare providers (although not the whole thing since there are out of date parts that an unfamiliar physician may not realize are out of date/have been updated/have been proven incorrect). There are a lot more types of EDS identified now, along with a number of comorbidities, and much of this has recent research that came out after this book was written and either confirms some of the clinical observations made by this doctor, or proves that some of the theories from that time frame where actually incorrect.I would also ignore the entire section on chronic fatigue as it is out of date and based off of studies that have been thouroughly discredited for improper research techniques, bias, and conflicts of interest. It also erroneously refers to chronic fatigue and chronic fatigue syndrome as the same thing, which is widly innacurate.
Dr Tinkle is a rare gem in the CTD world. Those of us with a Connective Tissue Disorder know how difficult it is to find a physician who in truly informed and engaged in up to date, appropriate treatment for these conditions. Dr Tinkle is amazingly available to his patients and truly cares about each individual he sees.In this book, basically a revised & expanded version of his first book, Dr Tinkle explains the head to toe issues experienced by an Ehlers Danlos patient. This condition, so unknown to most, is debilitating, excrutiatingly painful, and very difficult to treat. Dr Tinkle makes the complexities of EDS much more understandable for those of us without a medical degree.This book in an EXCELLENT resource for the newly diagnosed, or veteran EDSer who just wants to learn more. However, its most valuable use by far is as a learning tool for the Family Doctor who finds themselves treating an EDS patient. So few General Practitioners know anything about EDS beyond "Hypermobile, with stretchy skin" that EDS patients find themselves frustrated and unable to get proper pain management and care. I highly recommend that all EDS patients carry a copy of this to their GP and urge them to read it.This book is amazing, thank you Dr Tinkle!
I was super excited to get this book and the contents seem to be full of good information. However the print so awful I can't even get through a page to read it. There are no margins at all. The text goes all the way to all four edges of the page! This is hard on the eyes anyway, but it also means I'll have to break the binding to see the words that are squished into the gutter or inside binding. I'm so disappointed!!If they ever reprint it with real margins I'd love to have a copy!
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